Wys tans plasings met die etiket stupid cancer. Wys alle plasings
Wys tans plasings met die etiket stupid cancer. Wys alle plasings

30 Desember 2015

Goodbye Old Friend....



Peripheral neuropathy.
Defined by dictionary.com as Function: noun : a disease or degenerative state (as polyneuropathy) of the peripheral nerves in which motor, sensory, or vasomotornerve fibers may be affected and which is marked by muscle weakness and atrophy, pain, and numbness

You know what it feels like when your foot falls asleep?  Well imagine that intensified. Lucky me my friendship with neuropathy began after chemo ended.  I know I have written about it before, but really? After I am done with the toxic chemicals being injected into me I get a side effect.  Great. Thanks for that. A little bonus I wasn't expecting.

I started chemo on November 12th 2007 and finished up with (herceptin) treatment on December 29, 2008. I finished my chemo some time in April of 2008, I have the exact date in an old cell phone of mine,( have to get those milestone dates out of that phone before it gets tossed) My neuropathy started soon after that.

April 2008, and it just ended.  Or at least I hope.  I haven't had it in a couple of weeks.  So I guess it is gone.
December 2009~so that means my neuropathy, that tingling annoying pain sock, which was so painful at first that it was almost too much to bear, that tingling I got used to having, when I went to bed at night it would, if I was on my feet for a long period of time, would crawl up my leg up to my knee like spider creeping up its web, that after a while it was more of a nuisance that anything else, lasted longer than my treatment.  Longer than all of my treatments combined, including surgery, chemo, herceptin, and radiation. 

My treatment lasted 14 months.  My neuropathy lasted 20.

I almost don't want to post this blog, as if posting it will make it come back.

Ha ha but I am posting it anyway {gulp}


Mel is the producer/co-host of The Vic McCarty Show Monday~Friday 10am-noon eastern standard time.  Listen live on wmktthetalkstation.com

Check out my podcast The Cancer Warrior on Empoweradio.com

26 Desember 2015

Reflections



There are 5 days left of 2010.  I have to say it has been a long emotional year for me. Lots of good things have happened for me professionally.  This has been a great year pr wise for The Cancer Warrior.

I was one of a few featured survivors in a Chicago Tribune/LA Times article about cancer survivors (Thats me before Peggy Fleming and the president of Harvard with my photo above the fold, doesn't show it only though)

A Positive Ripple Effect magazine featured an article I had written.

I was featured on several radio shows, including The Stupid Cancer Show.  Matt Zachary who founded Stupid Cancer is not only a good friend but someone I admire.  I was blogging on my own blog and was also blogging on The Stupid Cancer Blog.  I am grateful to him for helping me get my start.

One of the most amazing things that has happened to me this year is being asked to speak at The Cancer Treatment Centers of America Empowerment Rally.  Out of all the cancer survivors I was picked with 4 other survivors from the US to talk about patient empowerment. I can remember the night before thinking that there will be a knock on the door and someone from CTCA would say uh sorry we made a mistake, here is a ticket for your flight home. 

I have met some amazing survivors in person and online.  I have an amazing group of people who have had all kinds of different cancers, all who share the same experience, and who all want the same thing, the end of cancer.  I know I can email, call, tweet, or facebook any of my friends at any time if I need guidance or help for myself or someone else. 

I have started new ventures in social media, helping others maintain their facebook pages.  Sounds easy, I know.  Someone asked me people actually pay you for that?  The answer is yes, they do.  Businesses and people get busy with their lives and need people to help them.  That is what I do.

One of the things I like to do is pay it forward, either to my friends by some simple gesture, but mostly to people I haven't met.  Its an easy thing to do, and it takes minimal effort.  Someone paid it forward to me this year.  They created my amazing new website  When my friend said he would do my website pro bono I never expected the extent of how much he has done.  I was blown away.  Honestly when I first saw it I almost started to cry.  I was just expecting nothing more than the go daddy parked site I had. 

Celebrated 3 years of survivorship.  Nothing is better than hearing all clear on blood tests, scans and physicals.  Nothing.

With all the amazing highs there were many lows as well.


September 15th. 

Just 3 days before I was to celebrate my 3 year cancerversary I lost a good friend to cancer.
 
Donald Wilhelm

He was such an inspiration to many, and I am grateful I got to meet him and call him my friend.  Even now as I am writing this the tears are flowing.  Knowing that just 4 months before he passed I posted an interview of him here.

And I saw him just 3 months before he passed away at the Pancake House with his wife Amy.  I am grateful I got to meet her and that Doug got to meet him. 

The photo below taken on Memorial Day weekend will always be one of my favorites.



Seemed like after Don passed away everything just sent me into a tailspin of depression.  Even with the pink ribbon program that I started at Pilates Midwest and the Pilates helping me to relax the cancer world that I was in was rocked one week with Don's memorial service, a friends recurrance and not one but two deaths because of cancer.

I have to say the last three months of this year have been some of the hardest I have ever dealt with.  Dealing with those passings, financial hardships, and just life in general got to me.

It was rough.

Almost as rough as when I was going through treatment. 

I can honestly say without prescription medications, family, and good friends being there for me I don't think I would have made it through these past 3 months as much as I did, and for you I am eternally grateful.

5 days until the ball drops and its 2011.

I have faith that 2011 will be better than 2010.
 
Faith consists in believing when it is beyond the power of reason to believe. ~ Voltaire


Mel is the producer/co~host of The Vic McCarty Show.  Listen live Monday~Friday 10am-noon eastern on wmktthetalkstation.com

Check out my podcast The Cancer Warrior on Empoweradio.com  Available on demand now and also available on Itunes



22 Desember 2015

Interview on BBC radio program World Have Your Say


BBC World Have Your Say Interview with The Cancer Warrior Dec 16,2011 from Cancer Warrior on Vimeo.

I was honored and humbled to be requested by the BBC to speak about "The Topic of Cancer"  Here is my segment on the program.

Check out my podcast The Cancer Warrior on Empoweradio.com.  Available on demand and also available on Itunes.

19 Desember 2015

Pilates and Beyond by Jennifer Kries



Another guest blogger.   Enjoy
When Mel asked me to write a guest blog on her site, I couldn’t help but marvel at the wonder that Pilates has been in my life to date; forget about the myriad benefits it has provided to myself and millions of others since its debut back at the turn of the last century, but how about the following example, this “water wheel of life” connectivity it has orchestrated around me as long as I have been doing it: Mel is the student of two shining stars in my immediate Pilates stellium: Senior Pilates Teacher, Jan Tirony-Johnson, the owner of my affiliate Mid-West Training Center, Pilates Midwest, and Lynn Descamp, Jan’s “right-hand” an exceptional and dedicated Pilates instructor in her own right. This is what I love about Pilates- the incredible, inevitable legacy that continues in the lives of all of the people it touches, and the way that it can bring people together, who ordinarily would have never had the opportunity to meet, let alone grow and evolve together. And this holds especially true for me in Michigan with Jan and the extraordinary studio community that she has created. I am honored to call her a true and dear friend, as well as an esteemed colleague, and have only the deepest affection and highest regard for her “team,” Lynn, Charisse, and Ashley, among others.


Thank you Mel, for asking me to contribute to your wonderful online forum and to help spread the word about the magic that is Pilates, but most especially, for giving me this opportunity to share just how much your teachers mean to me, and how grateful I am that Pilates helped me to open the door to these incredibly meaningful relationships with the special ladies you work with in Petoskey.

I first discovered Pilates at age thirteen with one of Joseph Pilates’ protégées, the late Eve Gentry at the prestigious School of American Ballet in New York City in what they then called a “Contrology Class,”--- the name Joseph Pilates gave to the technique he developed. Long before anyone knew what it was, we aspiring dancers used Pilates as a secret weapon to strengthen our abdominals and our bodies, so that we could jump higher, turn faster and move with greater precision and grace. I practiced Pilates throughout my professional dance career and it kept me inspired, injury free and powerful!


Pilates had been such an effective and profound mind-body tool, that I felt compelled to share it with the public. After getting certified in the early 90’s, with another one of Joseph Pilates “Master Inheritors,” Romana Kryzanowska, and becoming one of the privileged few “2nd Generation” Pilates Master Instructors, I introduced the Pilates “Mat class” to gym facilities in New York and watched the excitement build … people would have one taste of it and they would be immediately hooked. Even after one class, they felt taller, more energized, more capable and more alive.

I was thrilled to be able to influence the lives of the people in my classes in New York, but I wanted to share this incredible secret with as many people as possible. Serendipitously, one of my loyal students was in video production and said, ”Jennifer, you really should share this with the masses! Let me help you …” In 1998 I premiered the first ever Pilates video under “The Method” title, and just look at Pilates now.

Pilates is a non-impact, non weight-bearing system of physical conditioning that focuses on body placement and increasing awareness of the body’s capabilities and untapped resources. Pilates changes bodies. It makes them fitter, stronger and more attractive. It slims the muscles and makes them longer; it develops sleekness rather than bulk. It turns the abdomen and lower back into a firm, central support for a newly supple and graceful body.

Born near Dusseldorf, Germany in 1880, Joseph Pilates suffered from asthma, rickets and rheumatic fever as a child. His determination and drive to overcome those ailments led to his study of Eastern and Western forms of exercise, including yoga and ancient Greek and Roman regimens. By the time he was fourteen, Pilates had worked so hard at bodybuilding that he was able to pose for anatomical charts and had become a diver, skier and gymnast. When World War I broke out, he was an intern for a year in Lancaster, England, along with other German nationals. While in the camp, he taught his fellow internees the physical fitness program he had developed, and boasted that they would emerge stronger than they were before imprisonment. Those who followed his program resisted the influenza epidemic that swept the nation and killed thousands. He also encountered people who were disabled as a result of wartime injuries, diseases, and incarceration, and began devising machines using the springs from old hospital beds to help in their rehabilitation. These machines were the prototypes of the equipment used in Pilates studios today. 


Pilates believed that the “attainment and maintenance of a uniformly developed body with a sound mind, fully capable of naturally and efficiently performing daily tasks with spontaneous zest and ease” should be the objective for people of all ages and fitness levels.


Pilates’ six principles: concentration, control, centering, breath, flow and precision enable the practitioner to learn to move with maximum efficiency while minimizing stress on the body. You are able to access new levels in your body and create a deeper, more complete feeling of fitness, energy and vitality that remains with you days after your workout.

Pilates exercises make people more aware of their bodies. It helps to improve alignment and breathing and increases efficiency of movement. The focus is on the center of the body---the “powerhouse,” or the “corset muscles,” also known as the stabilizing core muscles of the torso, which support the spine. The rectus abdominus, the central abdominal muscle, running from sternum to pubic bone works in tandem with the transverse abdominus, the deepest of the abdominal muscles, wrapping around the trunk horizontally, acting like a "corset" when engaged. Other muscles that are important in providing good stability in the trunk, are the erector spinae, that run on either side of the spine, the quadratus lumborum and multifidus muscles in the low back, and the intrinsic muscles of the pelvic floor. The active collaboration of these major muscle groups creates a solid cylinder around the central spine, helping to prevent “shearing” or eroding forces from being applied to the vertebrae, ligaments and discs that evolve as a result of repetitive trauma, habitual patterns of movement that are unconscious and unproductive for the body-mind.

My favorite Pilates exercises are those that I learned first as a young dancer and they are also the very exercises that I feature in my DVDs, both those for the exercising public, my New Body! Pilates Series and those geared more towards the teacher trainee, or professional-track Pilates student, as well as certified teachers, my Pilates Method Master Trainer Series, which coincidentally, was filmed at Jan Tirony Johnson’s studio in Petoskey … They are the exercises from the original, classical mat workout developed by Joseph Pilates, a series that focuses on the abdominal center, the muscles of the torso, as well as breathing patterns for each exercise, teaching you how to direct energy to those targeted areas while relaxing the rest of the body. In all of my DVDs, one learns and immediately experiences what Pilates called “economy of movement.” Because you do the fewest number of repetitions with the greatest precision and control, you get the most out of your efforts, and your focus and determination grow exponentially.

On a spiritual level, the workout is concerned with the process itself. You learn to focus on the present moment and the movement itself rather than the outcome. This is a workout, a regime similar to yoga that promotes consciousness and facilitates evolution and self-transformation.

The subtle magic of Pilates is that the work grows as you do. You rise to higher and higher levels as your self-awareness and experience deepen. As you gain insight and as your actual physical strength increases, the work refines and redefines itself. 

Pilates is a unique, refreshing approach that sees our physical activity as a way to restore total oneness with ourselves and create harmony with our body, mind and spirit; under this notion, exercise becomes the means to experiencing a personal potential greater than the physical skills themselves. Every movement emanates from the center, which is also our emotional core, and the exercises truly help to "center" you. When you learn the advantage of paying attention to the energy, flow and rhythms in your exercises and see how pushing or forcing is counterproductive, you begin to apply this notion to the rest of your life. When you center your attention in the moment and act in harmony with time, you experience inner peace and fulfillment. By staying in the present, you can do less, yet gain more; paradoxically, you create more personal power and energy enabling you to have a greater influence over the outcome both in your sessions and long after you leave the studio.
My love of Pilates began long before its era of popularity and has served as a pillar of strength for me in all aspects of my professional athletic and artistic life, enlivening my spirit, conditioning my body, reinforcing my self-esteem and overall feeling of peace and well-being. I continue to be amazed and delighted every time I teach a class, or I take one, just how simple, yet powerfully transformational “The Method” truly is, and how its effects grace the body mind and spirit with a gift you give yourself, and one that catalyzes profound changes in one’s being. How appropriate now, during this season of giving to consider such a wondrous thing, that the gift we give ourselves doesn’t stop with us, but goes well beyond us to touch the lives of each person we come in contact with ... 

Pilates and other mind-body-spirit modalities center and balance us, making us more aware of ourselves and what makes us feel good, so that we then have greater reserves to share those good feelings with others, reminding us of what is truly important in life, like seeing someone smile as a result of our single act of kindness that reflects right back into our hearts. Pilates, very simply, makes us into healthier, kinder, more generous, more connected, conscious people and makes the world a better place.

Jennifer Kries
Bio

Dancer, choreographer, yoga devotee, author, lifestyle expert and Pilates master teacher, Jennifer Kries is an unparalleled innovator in the realm of alternative health and fitness. First to bring Pilates to the masses, her award-winning videos and DVDs, The Method Series, Jennifer Kries’s Pilates Method and Fox/Fit TV’s, The Method Show, revolutionized the fitness community, paving the way for the current wave of enthusiasm for Pilates mind-body exercise. 

One of the country’s preeminent Pilates master teachers, she is responsible for launching many of today’s most respected professionals who teach either traditional Pilates or The Method, her trademark mind-body synthesis: Pilates, yoga, and dance. She is the founder of New York’s, Balance Pilates, Yoga, and Dance, Hot Body Cool Mind—The Studio in Philadelphia, Artistic Director and Founder of Contemporary Dance Theatre New York and most recently, creator and producer of yet two other ground-breaking DVD series, Jennifer Kries’ Pilates Method Master Trainer Series and Hot Body Cool Mind: The Life Force Power Workout!
Her approach to fitness and wellness is unsurpassed. Jennifer brings unmatched clarity and an extraordinary perspective to her teaching. She has inspired countless readers, practitioners, graduates of her programs, and viewers alike to embrace her all-encompassing philosophy of movement, art, health, life and energy. Through her inspiring work, she helps people transform far more than their bodies, enabling them to tap into a reserve of power never before experienced. Her attention to detail, superb teaching style, artistry, and knowledge of Eastern healing techniques, anatomy and energy dynamics makes her one of the most highly sought-after mind-body teachers in the world today.
For more information on Jennifer and her Pilates and other fitness DVDs, visit her website: www.jenniferkries.com

15 Desember 2015

Parts Whole

 

I started playing organized hockey again.  I played a couple of times last year, pick up, but not organized, not like I was when I played in California in Burbank and Pasadena.    There they would have an actual draft, where they would make you do drills and try to set up the teams evenly so there wasn't one team that was loaded with great players and the rest with average players like me. 

Hockey means a lot to me.  Its hard to explain why.  Some things are just your passion, they get into your blood.  I started playing in my mid 30s, wanted to exercise and didn't think I would go to the gym that much, so I used my tax refund to buy hockey gear at a store in Woodland Hills, CA.  Out of all places to get into hockey, go figure I get into it in California.  Never been one to follow the norm.

2007 was a hard year for me hockey wise.  Not only did I find out my diagnosis on the last day of Red Wings Training camp but I had to tell my team that I had cancer and I couldn't play that year.  That was hard.  We had a beginning of the season party and I didn't tell anyone until then.  Everyone was shocked.


I was hoping that I could play that year.  That hope was dashed when I had my port put in.  No contact sports. I would have that port in until 2009.

Two frickin years.

Two years of not playing hockey.

That was hard. Obviously going through chemo, radiation, surgeries and all the crap that went with it was hard, but not playing was hard. 

Hockey is cathartic for me. 

It is zen for me. 

There is something about the stillness about getting on a freshly zambonied sheet of ice.  Hearing your skate blades hit the ice for the first time.  Skating a few times around the rink.   Doing some stretches.  Then getting into the game.

If everything is going crazy in the world the ice is the one place where everything makes sense.  I think everyone has one of those places.  For me it just happens to be a rink.  

Not being able to skate and to play made me feel less like me.  Trying other sports or activities to fill the void just didn't cut it. 

Something was missing. 

Something that was a part of me.

As I got dressed in the locker room with some of the ladies that I have played with before I felt a sense of peace that I haven't felt in a while.  

Stepping out onto the ice I felt shaky.  But skating is like riding a bike you never forget.


We did drills and did a draft for teams and then we scrimmaged.  There were players on the ice that were better than me and some that were not.

As I sat on the bench between plays all I kept thinking was this:

I beat cancer I can do anything on the ice.
 
I'll keep you posted when I net my first hat trick.

Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com


Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes




03 Desember 2015

Road Trippin'


  


 I had 2 doctors visits in one week.  That is unusual for me lately.  Both were routine follow ups from oncology and radiation oncology.  I didn't have the usual scanxiety that I usually have.  I had a mammogram just a month before and everything was normal, so I naturally assumed that neither doc would find any problems.

I like to drive.  Everywhere.  I drive more than Doug.  When I lived in LA that was part of my job, driving to set, from editorial to one of the post houses, mix stages etc. Most people get totally stressed in rush hour on the 101, the Hollywood Freeway.  I find it relaxing.  Yeah your not moving, but you can clear your mind and focus.

I would always drive to my doctor appointments, chemo, radiation, I think I even drove to surgery.  Most of the time after chemo I wasn't in any shape to drive, the drugs would knock me out (and no I didn't drive after my lumpectomy surgery, but apparently I called several people to tell them I was ok while I was still heavily medicated.  Wonder if that audio is still around.)

Monday I drove to the oncologist.  Driving to the hospital for what I knew would be a routine follow up brought a flood of memories to me.  Why I don't know.  I thought about the routine I would have for the day.  I would get my blood drawn out of my port at about 9am.  Hated that goddamn port. Looked like a fucking bottlecap under my skin, and it would hurt sometimes when I moved a certain way.   Go to work and produce The Vic McCarty Show for 2 hours, drive home.  Put lidocaine on my port and cover it with plastic wrap so it wouldn't rub off.  Lidocaine numbs the area.  I would see the oncologist.  he would go over my blood counts to make sure I was strong enough to do the chemo, then it was a short walk to the infusion center.  There were a couple of times that I forgot to put Lidocaine on my port and when they jabbed the syringe in me for the chemo  it hurt like hell for the entire treatment, which lasted anywhere from 1-3 hours, depending upon the meds.

I thought about how much I had been through.  Sometimes I can't believe it.  Its only been 3 years but it also feels like a lifetime ago.  I thought about how much Doug has been there for me. Every chemo, every radiation.  During chemo I would fall asleep  because of the meds and he would go to the cafeteria to get something to eat for himself.  He would come back with Lays potato chips for me.  They made me feel better when I was done.  I would groggily walk to the exit of the cancer center and Doug would get the car and pull it up so I wouldn't have to walk too far. 

During the drive to the doctor I wondered why I wasn't nervous or scared.  Was it because I was just too busy with work and advocacy?  Maybe I have just gotten to a place where I know I am going to be ok, and as my friend Donald Wilhelm would say "It is what it is." 
No its neither one of those things.  I don't know why the appointments didn't bother me.  I still don't.  It makes no sense.


Cancer still affects me.  Well the side effects do anyway.  The neuropathy that went away now comes and goes.  Like I need a fucking reminder that I had cancer.  It frustrates me that I still have it.  That when sometimes when I am doing pilates I can't feel my toes or part of my foot.  Kind of hard to focus on the poses and breathing when you aren't even sure where your foot it.  I know its where it should be.  I just can't fucking feel it.  Frustrating when the instructor asks you to move a part of your foot and you have no clue if you are or not.

And the damn depression.

Of all the side effects I have had I wish I could trade that one for something else, like you used to to with marbles or baseball cards when you were a kid? 

Hey I'll trade you depression for insomnia or chemobrain.

Shit.  I have both of those too. 

Nevermind..

Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com


Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes


19 November 2015

You Like Me, You Really Like Me!!!



Just got an email today from Amy from licensedpracticalnurse.com saying they liked my blog and is featuring it on their website as one of their top breast cancer blogs.

I am honored and humbled by The Cancer Warrior's inclusion in this list.

I hope this means that I am making a difference in cancer survivor's lives.


Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com


Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes

18 November 2015

Flip the switch


I had an appointment with the doctor the other day.  My general practioner.  Regular checkup.  My doc always asks about my meds, my moods.  Told her sometimes I feel down. Yeah I get depressed.

Sometimes I can snap out of it pretty easily, sometimes I can't.

This was one of those times I couldn't.

I wish I could figure out what brings my mood down.

Some days it seems like it comes out of nowhere, and suddenly I am deeply entrenched in emotions that make no sense to me, but sometimes they do.

It can come in waves, like one moment I am fine the next I am not.

Its worse when your alone, or at night, when there is nothing but your own thoughts surrounding you.

I guess its no wonder that it is hard for me to fall asleep because when I feel this way all I do is think about the things that bother me, or what is upsetting me.

The thing that really gets to me is how I can be fine, then just feel totally steeped in it.

Its inexplicable really, unless you have been there, and if you are reading this I hope you never have been.

I recall one of the times that I felt the worst was right before the carcinista had passed.  That was end of April early May of this year.  I was at a friends house apologizing for the way I had acted, another wonderful thing about this mental condition of mine, I have a tendency to lash out at people that I care about, do and say shit that is totally out of character for me.  I don't recall exactly what the conversation was about but I know I was in a dark place and I felt utterly lost.

Its not something you can just snap out of.

So I try to make sense of it all. Figure out what gets me down.

Ultimately I have no idea.

Right now I am feeling pretty fucking good, and man I love this feeling,

The feeling I had before cancer, before Sept 18, 2007.

Then I wonder when my brain chemistry is going to go askew and flip that switch.

Lyrics from Pink's song Perfect:

You're so mean, 
When you talk, about yourself,
 you were wrong, 
Change the voices in your head
make them like you instead  


If only it was as easy as the song makes it out to be.

I will continue on the fight against my own mind, when the depression hits, when the switch is flipped, I gotta find the right trigger to put it back.

Until then I will continue to advocate, blog about it,try to destigmatize it.

That's the only thing I can do.


Check out my podcast The Cancer Warrior on Empoweradio.com.  Available on demand and also available on Itunes.



13 November 2015

In Response to NY Times article "Think About Pink"

So the creator of project boobies emailed me a link to a NY Times article recently.  About this survivor who was complaining about the pink ribbon on everything.  To that I can relate.  Everything seemed to have a pink ribbon on it.  I get that, in October the ribbon was everywhere.  That is the only part of the article I can agree upon.
Paraphrasing, she said that the pink ribbon was on everything and it promoted "awareness."

Then she said this,
"The experience of actual women with cancer, women like Rollin, Black, Ford and Rockefeller — women like me — got lost."

Uh what?

So I put on a Save the Tatas shirt or a Project boobies that takes away from your experience with cancer?

She says "Sassy retail campaigns have sprung up everywhere, purporting to “support the cause.”
Ok so as a writer shouldn't you check facts?

In the photo for the blog I am PROUDLY wearing a projectboobies shirt for a tv interview, one that she was complaining about in the article to be sassy and purporting to "support the cause."

Sorry Ms. Orenstein, it does support the cause.

Have you heard of Kokolulu?  A free retreat for cancer survivors in Hawaii.  A portion of project boobies proceeds goes to fund the retreat.  THE FREE RETREAT.

As for Save The TaTas, a company I am familiar with, a company who, whenever I ask for t shirts for a fundraiser or a group the owner Julie Fikse donates to me without question, has according to their website donated $535,000 towards ending breast cancer.

Sorry that diminishes your battle.

 Sorry that Kris Carr, survivor and author of Crazy Sexy Cancer bothers you with her positive message.

Does it diminish the battle of the 52 year old survivor who asked my friend for a save the tatas shirt, knowing that she got it from me?  Does it diminish the fact that the doctors didn't give her much time to live. 

I say No.

Most of the breast cancer survivors I know are in their 20's and 30's so I would instead of wearing as you would want me to a “I ❤ My 72-Year-Old One-Boobied Granny t shirt instead of the tatas or projectboobies shirt I would wear my  I ❤ My 27 yr old friend who is a college student and a young adult breast cancer survivor

Because I do.

And a pink ribbon on toilet paper doesn't diminish the battle or the stories of my friends Lani, Angella or Ann, who are survivors, bloggers, and advocates (and Ann at this time is facing a recurrance)


Seeing a pink ribbon everywhere doesn't diminish my battle. It only fuels my fire to advocate for ALL CANCERS  even more.   I maintained a positive outlook while battling cancer and depression at the same time.  I guess I just prefer to live my life positively, even while staring in the face of my own mortality.

No survivor I have ever heard say cancer is fun.

We all know it sucks.

Wrap that up in a pink ribbon. 

Mel is the producer of The Vic McCarty Show.  Listen live Monday~Friday 10am-noon eastern on wmktthetalkstation.com

Check out my podcast The Cancer Warrior on Empoweradio.com. Available on demand and also available on Itunes.

31 Oktober 2015

Opportunity Knocks





Cancer Sucks
 Yeah we all can agree on that.  It takes a toll.  A physical and mental toll on you, your friends your family, pretty much everyone that is close to you.  People don't know how to react around you when you have it, the whispers, the stares.  The treatment kills everything, even the good cells,the equivalent of  medical napalm.  It makes you tired. Radiation makes you tired, hell everything makes you tired.  After your course of treatment you hope to hear one word: Remission.

Everything happens for a reason.  Or so I am told. That is a hard pill to swallow when your hair falls out and you feel like shit from a treatment that is supposed to make you better.

But you know what, I have to say I believe it.

Cancer has taken some things, but has given me more than I care to admit.  I eat healthier than I probably would have if I didn't have it, I work out more, well, I am a bit of a gym rat lately, just getting back in to hockey playing shape, I enjoy my friends my family and well, life in general.

I love my job as co-host/producer/partner in crime on The Vic McCarty show, a job I got because of cancer.

Because of cancer I was able to jump in on a startup of an internet radio station: Empoweradio.com.  I produce shows, and now I host my own show The Cancer Warrior.  I have been pretty lucky lately, good things have been happening.  Do I attribute it to cancer?  I guess I have to.  Opportunity knocked and I answered the door.  Would I have heard the knock if cancer hadn't of come into my life like a tasmanian devil, leaving a path of mental and physical destruction in its wake, forcing me to either cower in a corner, which, if you know me, just isn't my style, or get up and fight the devil,  winning the fight some days, some days losing, but eventually winning the battle.


I have to say that I have had a great attitude during all of this, I think if we all picture cancer looking like this:



it would be a hell of a lot less scarier.


Mel is the producer/co-host of The Vic McCarty Show. Listen live Monday-Friday 10am-noon eastern standard time on wmktthetalkstation.com 

Check out my new show The Cancer Warrior on Empoweradio.com available on demand 












Great information for everyone in the breast cancer community

29 Oktober 2015

Wow!!!!!! This blog was named on of the 15 Inspiring Breast Cancer blogs by Toponlinecolleges.com



Wow I am honored and humbled to be named among this amazing list of breast cancer  survivors. 
Thank you to everyone at Toponlinecolleges.com and thank you everyone for continuing to read about my cancer journey.  I always have to thank Matt Zachary for letting me blog on stupid cancer. 


Mel is the producer/cohost of The Vic McCarty Show. Listen live Monday-Friday 10am-noon eastern  on wmktthetalkstation.com


Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.

27 Oktober 2015

Hockey Fights Cancer night at Joe Louis Arena



I had Bekki Nill on my podcast last year.  She is the wife of the Assistant General Manager of the Detroit Red Wings.  She is also a breast cancer survivor.  She invited me to the Hockey Fights Cancer night at the Joe Louis Arena.  Every hockey team has a HFC night.  It is " a joint initiative founded in December 1998 by the National Hockey League and the National Hockey League Players' Association to raise money and awareness for hockey's most important fight."   That is off of NHL.com.  Needless to say I am happy that the NHL sees the need for more funding going towards cancer, and if you can catch a hockey game in the process, well then I am all for it.

It was my first professional sports game I had been to since diagnosis, and the first game I had seen in a suite since I moved from California to Michigan.

Watching the teams warm up made me want to get on the ice and skate.  I hadn't played since March, and there is just something about the sport of hockey that speaks to me in a way that nothing else does.

Watching the game from the suite was an amazing experience.  As I sat there watching the game, the players, I felt good.  Better than I had in a long time.  I think my friend Ashley (another cancer survivor)  and I were the only ones into the game, and I get really into the game.

I honestly and truly appreciate Bekki Nill's invitation to Hockey Fights Cancer night at the Joe.  Probably more than she realizes.



The Red Wings helped me fight cancer.

Hockey helped me fight cancer.


And it still helps me now through survivorship.

As I think of that night and look through the goodie bag full of stuff I will always be grateful to the Wings, and especially to Bekki, and her husband John for what they have given me, not the autographed Lidstrom puck or the pink hat with the Winged Wheel.  

But for something more. 


They keep me skating, and advocating.

Hockey really does fight cancer.

Check out my podcast The Cancer Warrior on Empoweradio.com.  Available on demand and also available on Itunes.

23 Oktober 2015

A little color can change your perspective




I am not much into fashion.  If you know me you know that, usually you will see me in jeans and a t-shirt, probably of a sports team (Red Wings, LA Kings, Red Sox, Tigers, U of M football, you get the drift) I have been thinking about what to post, since my last blog was a repost from when I was deep in treatment, so I thought I would write something new.

The picture above is from when I got my hair colored at Trillium Salon.  I was going to another salon in town, (god, from me that sounds so pretentious doesn't it?) but I met the owner Ruthi at a local event in June.  Ruthi is a cancer survivor like me.  She survived breast cancer and created a program called Beautiful Survivor at her salon.  Patients and survivors of any kind of cancer can come to Trillium and get manicures, pedicures, a massage hair cut and color & wigs, all free of charge. 

Cancer and chemo changes everything about you.  The way you look, the way you feel, everything.  Its not something you can explain to anyone who hasn't gone through it.  To the outsider, to your friends, you look the same, act the same, but you are not. You want to get back to some kind of normalcy, if that is at all possible, try to get back to the normalcy you had before.  Like your hair for example, like I said before, I am not much into fashion, you wont see me try out the latest 'do from Hollywood,  but losing your hair and having it grow back grey reminded me of what I went through every day.  Believe me I am grateful for my health and the fact that my cancer was caught early, and I am not vain at all, but my hair growing back in was a reminder of cancer, chemo, feeling fatigued, feeling crappy and all the things associated with cancer and the napalm that was injected into my veins to save my life. Thank goodness for Ruthi.  Not only did I get an awesome massage, I got my hair colored, which honestly, I didn't think would make a difference.  I felt and  looked alot like my old self.   My friends could tell the difference, my co workers could tell the difference, and my fiance could tell the difference.

Who would have thought that a little color could change your perspective?  Not me.  I guess I was wrong. 

17 Oktober 2015

Beyond a Reasonable Doubt


Today Lance Armstrong stepped down as chairman of Livestrong. I am deeply saddened by this.  He did so so Livestrong wouldn't be put in the middle of the USADA's allegations of Lance doping during 1999-2005. 

Nike, Radio Shack and Anheuser-Busch dropped their endorsement deals with Armstrong.

 Nike dropped  their endorsement deal because of "seemingly insurmountable evidence"

Controversy over doping.

Does it seem impossible that one man is telling the truth and many others are not?

It happens.

Does it seem impossible that one man can win 7 Tour De France without doping?

It happened

It used to be that a handshake and someone's word were all that you needed.

Isn't it innocent until proven guilty?

 Not guilty until proven innocent.

Let me tell you something about cancer survivors, at least my experience.

There are times during treatment when you think you will always feel sick

That you will never be well again

That you will never regain the ability to do what you used to do

That you will never, essentially be you again.

When you finally realize how far you have come you want to live life to the fullest, grab the brass ring, run that marathon that you never thought you would, skate harder and faster than you have, ride a bike faster because you know the value of today, and know there may not be a tomorrow.

I am not a professional athlete.  I play hockey in an adult amateur league and participate in runs like the Warrior dash. 

I have never won a professional sporting event, like the Tour, nor will I ever.

But I do know this:

If you are a cancer survivor once you get that exhilaration, that taste of life, that winning feeling, you want it to continue.

So what do you do if you are Lance Armstrong?

Win the Tour 6 more times.

Some people will say I am just supporting Lance because I am a cancer survivor.

That may be true, although I read his book It's Not About The Bike before I was diagnosed, I have never been a Livestrong Leader, participated in any Livestrong events, nor have been to the Livestrong headquarters in Austin.

I am a cynic yes, but I do believe the value of a man's word.  My Dad taught me that. 

So while your sponsors like Nike and Radio Shack may have left you,Lance, I, like many other survivors stand behind you.

Nike dropping sponsorship makes no sense to me, while they drop Lance, they re sign Michael Vick after his dogfighting charge and jailtime.

Doesn't make sense. 

Michael Vick was convicted.

There are just allegations against Lance Armstrong.

I guess some people and organizations get scared when a scandal hits close to home.

I don't back away from the people who have helped me, even if they don't realize they have. 

Backing people who have helped you even though they may not realize they have. 

Its the right thing to do.

Just Do It.

Check out my podcast The Cancer Warrior on Empoweradio.com
Also available on Itunes and on the podcasts app on the iphone

Definitions are all relative


This blog was originally written on 5/19/08.  Just my opinion, and at the time I was deep in treatment.




I participated in my first group therapy session today.
I am part of an online group meeting. We meet every Monday night. Much easier or so I thought than doing one live and in person.
Today I went to the infusion center and was in one that they have every Monday at 2pm. I have been invited to join every Monday since the group started. Normally I don't like talking about myself to perfect strangers (yeah I know I am on the radio so I do it almost every day, but this is different, because you actually see the peoples faces who you are talking to) but I decided that I would try it. Susan, the social worker who is in charge of the group would ask me to participate when I would come in for my chemotherapy treatments. Well since the medications make me fall asleep I thought I wouldn't be that interesting to listen to as I would probably fall asleep during the session. How rude!! Not my fault I blame the drugs. Anyway as we were waiting there was a lady there who was a 2 time survivor of breast cancer. She asked me if I was a cancer "victim." Ok that really got my ire up. First of all I am not the victim of anything. If you get diabetes are you a diabetes victim? Or get the flu are you a flu victim. No I think not. Freedictionary.com defines victim as "one who is harmed or made to suffer from an act, circumstance, agency or condition. " That could be defined as almost anything. Yep I drank way too much wine last night, therefore I am a hangover victim. I ate too many chips at the mexican restaurant therefore I am a nacho victim? NO!! I immediately corrected her and said I am a patient or survivor. Maybe she feels like a victim, but I do not. I don't really feel like a survivor either. Most people say you are a survivor as soon as you are diagnosed. I don't really know how I feel about that word either. Freedictionary.com defines survivor "to carry on, despite hardships or trauma, persevere, to cope with a trauma or setback, persevere after." Ok so I guess by definition I am, but I won't be done with my herceptin until December, so I still feel like a patient. I think I will feel more like a survivor when I get this damn port out. Ok so I digressed. Back to the whole group therapy thing, I guess it was a little cathartic. There were a couple of people there, one lady who had inoperable liver cancer and one who was a breast cancer survivor for 10 years. We all talked about our own experiences, drugs we take and our caregivers. It was a good experience. If I can make it for more I will, depending upon work schedules. Oh well my last thought is this. If you see someone,or talk to someone that has or had cancer, don't think of them as a victim, or even if you do, don't call them that, that lady didn't know me or my experiences, maybe in her mind she is a victim. but in my mind I am not.
We also got this cool book called crazy sexy cancer at the group meeting. I found a good quote in there and I will leave you with it.
"Courage is being scared to death, but saddling up anyway." John Wayne said that.
Giddyap


16 Oktober 2015

Humor Rocks and Laughter heals



Having cancer isn't funny.  Everyone knows that.  It's a serious disease that takes so much from so many.

I have been blessed with a wicked sense of humor.  I get that from my Dad.  I remember when I was meeting with the surgeon to discuss my course of treatment I never thought I was going to die.  I thought wait, one year of treatment would mean no hockey!  Not usually something you think about when faced with a disease like cancer.

Humor and sports.  That's what got me through my treatment and still does through survivorship.  I remember someone who hadn't seen me for a while saw me while I was going through treatment and commented on how great I looked.  Since I was working out so hard for hockey season the docs said I didn't lose as much weight and went through treatment better than most.  I said "Cancer is the best diet I ever had!"  Some of those around me were shocked by what I said.  But I know that my sense of humor was going to get me through this.

That is why I love Save the Ta-tas and their message.  It makes me laugh, it brings awareness, and they donate proceeds to various charitable organizations.  Did you know that they have donated $690,0000 to charity to date?  This means that your purchase can help others.  Find out more on the Save the ta-tas site.

Because of the generosity of  Julia Fikse of Save the ta-tas I was able to pick out a shirt and one of my readers will win it. (just post a comment why you like the ta-tas brand) I am hoping that the sense of humor will help you through your survivorship as it did mine. 


Imagine a world without cancer.

I can.

Can you?

Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.

08 Oktober 2015

Tug of war


I have been thinking about blogging about this for a while now.

Many things have happened recently that have made me want to put fingers to the keyboard.  If you are a constant reader of this blog then you know a good friend of mine passed away from cancer recently.  It has been hard to say the least.  Add to that the mountain of debt that keeps getting larger, chemo brain, which frustrates the shit out of me, I don't knowing what I want to say but not having my brain fire synapses correctly, neuropathy, having to take x amount of pills at so and so times, etc, etc, etc.

Some days I feel like Sisyphus pushing the rock up the hill.

My mind is alway working constantly, either thinking about work, or advocacy, or how I can help someone out, hockey, whatever,  it doesn't shut off.  You could look at me and see me sitting calmly at work at the computer or talking on the air, my brain is constantly thinking, (yeah I know I just said I have chemo brain, comes and goes, like the mogwai in the movie Gremlins, don't get it wet, don't feed it after midnight, if only it was that easy to predict when it would kick in)

I battle constantly with this, all rolling around in my head like many tornadoes.  Its frustrating.  No wonder I don't know how to relax.

Yeah you read that right.  I don't know how to relax

I can sit still but I can't relax.  I can't really sleep either  I can't sleep unless I am medicated, I have a mouthguard in at night so I don't grind the shit out of my teeth. 

You know when people get a massage they get all relaxed and go to that happy place, maybe even fall asleep, I don't.   I used to, but I don't know what happened.  I have gotten some great massages here, and they have worked out knots and tension in my muscles.  But I can't relax during the massage.  I don't know why.

I did the reeling and healing midwest program for cancer survivors, a 2 day fly fishing retreat close to where I live.  I know you are thinking what the hell does fly fishing have to do with cancer.  Well let me tell you.  It does help you relax, standing in the water there, with your guide, and nature.  I figured out how to relax.

Unfortunately I can't take the stream and all of nature with me all the time.  Yes the program is totally awesome, and I would recommend it in a heartbeat,and it helped me, but not being able to relax is something I am trying to overcome.

I found a brochure for a pilates program that a local studio was putting on.  It was for breast cancer survivors, designed by a survivor.  It was free, I called, they had to wait for enough participants before they could start the class.

So a few weeks later there I was in class with 3 other survivors, all at various stages of survivorship,all of us were well past surgery.  

We were all there not knowing what to expect.

It was an eight week mat class, doing various exercises to strengthen the core and the muscles around where women would have had mastectomies, lumpectomies and lymph node removal.

Now I wouldn't have thought that something that may look like to the average person, a bunch of simple stretches would have any kind of impact on me, except for maybe getting a little toned.


But it did. 

I have written before about my constant struggle with depression, yes I am on meds, but sometimes the mind can over come the meds, a tug of war in my head, dealing with the many mini tornadoes in my head and just survivorship of everyday. 

I do maintain a positive mental attitude

But some days are harder than others.


Doing the pink ribbon pilates program with the other survivors helped me to find my comfort zone within my self.  Lets face it having cancer  and survivorship takes you completely way out of your comfort zone.


But with pilates it has forced me back in.


And helped me to relax...


A little more than before.


That is something I still need to work on, but I am slowly chipping away at that stone.


I found this quote and I will leave you with it:

Some of the greatest battles will be fought within the silent chambers of your own soul.
Ezra Taft Benson


 Mel is the producer/co~host of The Vic McCarty Show.  Listen Live Monday~Friday 10am-Noon eastern on wmktthetalkstation.com


Check out my podcast The Cancer Warrior on Empoweradio.com available on demand now and also available on itunes.
 

29 September 2015

Looks can be deceiving





If you stopped by my house and saw this winter hat, you would think nothing of it.  I live in a cold climate, something anyone would wear during the winter. 

But this hat means a lot to me.

Cap
Chapeau
Toque
Hat

There are many names for it.

But this particular one is important.

I wore this when I lost my hair during chemo.

I knew when I got my head shaved I would probably be cold.  I usually have long hair and not having any well that was an abrupt change.  When I thought about what hat I should get to wear during the winter, to treatment, at home and when I slept I knew I wanted this one.

Under Armour.

I know its a good brand because I wear it when I play hockey.  I think I started wearing it before it was the normal thing to do, wear a dry wick material shirt under gear.  Bought my first shirt in El Segundo, California, where the Kings train, back when it was called HealthSouth, now its the Toyota Sport Center.

I wore the hat because it not only covered my head, but it reminded me I would get stronger.

Its funny what we cling onto when we go through something like cancer.  I imagine other people have trinkets and lucky stuffed animals that they cherish, that to other people look like a knick knack on a shelf, or just another stuffed bear.

But to survivors, these things can mean the world.

To me its a reminder of where I have been, and how far I have come.

Are you wondering do I still have my cap?

Damn right I do.

Check out my podcast The Cancer Warrior on Empoweradio.com
Also available on Itunes and on the podcasts app on the iphone



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