Wys tans plasings met die etiket healing. Wys alle plasings
Wys tans plasings met die etiket healing. Wys alle plasings

31 Desember 2015

In Retrospect


Should old acquaintance be forgot,
and never brought to mind ?
Should old acquaintance be forgot,
and old lang syne ?
Never really sure what that song meant... Should we forget about the past and not think about it? Or never forget it. Not really sure.
2012 has been an interesting year for me.  
One of great happiness, as well as great sadness.
I celebrated my 5 year anniversary of being cancer free.
And I also lost some good friends along the way.
People like me, who have faced their own mortality, realize how precious life is.

How important it is not to waste even a second of it.
If you are full of hate you miss out on joy
If you are angry you won't be happy.

If you worry  you won't have hope.
You never know when the last time you will see someone will be.
One of my friends passed away this year suddenly from a stroke.
She was one of the greatest people I have ever known.
I still remember the last time I saw her, it was like any other day.
I watched her walk away with her coffee as I was continuing my job,
I had no idea it would be the last time I saw her.
Tell those important to you that you love them.
Know that everyone who comes into your life is there for a reason.
Enjoy every day.  
Drink in the sheer awesomeness that is life, and this earth.
Life is precious.
Enjoy every second of it.
There are 31,536,000 seconds in a year.
 Don't waste any of them.


I'll leave you and 2012 with this quote from John Hughes, from the movie Ferris Bueller's Day Off:

"Life moves pretty fast. If you don't stop and look around once in a while, you could miss it."
Check out my podcast The Cancer Warrior on Empoweradio.com.  Available on demand, on Itunes and on the Podcasts app on your iphone


22 Desember 2015

Interview on BBC radio program World Have Your Say


BBC World Have Your Say Interview with The Cancer Warrior Dec 16,2011 from Cancer Warrior on Vimeo.

I was honored and humbled to be requested by the BBC to speak about "The Topic of Cancer"  Here is my segment on the program.

Check out my podcast The Cancer Warrior on Empoweradio.com.  Available on demand and also available on Itunes.

06 November 2015

A Positive Ripple Effect



A while ago I was asked to write an article for a magazine.  I can't even recall how long ago that was, I blame chemo brain for that.  Some things I just can't retain.  I try to get used to it but it is still frustrating as hell...

Its not like I submit things all the time.  I don't.  Most of the time I just write on my blog or submit to a few things here or there.  So when I got the email from Brent from Empoweradio.com.  I was like "oh yeah, sweet!!"

Imagine my surprise when I opened up the email link for the magazine and I saw my name on the cover. 

Wow. 

I am grateful to Kim and Cheryl the creators of the magazine to be included in the premiere issue.

I am honored and humbled to be on the cover.

I am glad there is a magazine that is spreading positive messages out there.


Check out A Positive Ripple Effect.  My article is on page 34. Please check out the entire magazine, and share it with your friends.

Mel is the producer/co~host of The Vic McCarty Show.  Listen live Monday-Friday 10am-noon eastern on wmktthetalkstation.com

Check out my podcast The Cancer Warrior on Empoweradio.com available on demand now and also available on Itunes.

27 Oktober 2015

Hockey Fights Cancer night at Joe Louis Arena



I had Bekki Nill on my podcast last year.  She is the wife of the Assistant General Manager of the Detroit Red Wings.  She is also a breast cancer survivor.  She invited me to the Hockey Fights Cancer night at the Joe Louis Arena.  Every hockey team has a HFC night.  It is " a joint initiative founded in December 1998 by the National Hockey League and the National Hockey League Players' Association to raise money and awareness for hockey's most important fight."   That is off of NHL.com.  Needless to say I am happy that the NHL sees the need for more funding going towards cancer, and if you can catch a hockey game in the process, well then I am all for it.

It was my first professional sports game I had been to since diagnosis, and the first game I had seen in a suite since I moved from California to Michigan.

Watching the teams warm up made me want to get on the ice and skate.  I hadn't played since March, and there is just something about the sport of hockey that speaks to me in a way that nothing else does.

Watching the game from the suite was an amazing experience.  As I sat there watching the game, the players, I felt good.  Better than I had in a long time.  I think my friend Ashley (another cancer survivor)  and I were the only ones into the game, and I get really into the game.

I honestly and truly appreciate Bekki Nill's invitation to Hockey Fights Cancer night at the Joe.  Probably more than she realizes.



The Red Wings helped me fight cancer.

Hockey helped me fight cancer.


And it still helps me now through survivorship.

As I think of that night and look through the goodie bag full of stuff I will always be grateful to the Wings, and especially to Bekki, and her husband John for what they have given me, not the autographed Lidstrom puck or the pink hat with the Winged Wheel.  

But for something more. 


They keep me skating, and advocating.

Hockey really does fight cancer.

Check out my podcast The Cancer Warrior on Empoweradio.com.  Available on demand and also available on Itunes.

16 Oktober 2015

Being Sick is Personal



Another Guest Blogger, Enjoy


If you’ve recently been diagnosed with cancer, or someone you know has, you’re about to
enter something you probably never knew existed: illness culture. As you can see by the
existence of this blog and the thousands of other cancer-specific sites on the Net, having an
illness is a huge part of people’s lives, and as such, it becomes a part of their self-identity.

In this way, illness culture resembles any other group with a defining characteristic in
common, just like people of a certain religion, or motorcycle enthusiasts, or a clique of
teenagers.

And while many find their particular illness culture to be supportive and helpful through
their struggle, some can become sick only to find that they don’t “fit in” in with the
main line of thinking or expression associated with their group. Barbara Ehrenreich, a
breast-cancer activist, discusses this issue in her great essay, “Welcome to Cancerland.”

In the essay, she confronts the predominant feelings and modes of dealing with cancer that
she encountered in breast cancer culture, and how she ultimately did not identify with
them. In her mind, breast cancer’s “cult of pink kitsch” was infantilizing and infuriatingly
positive.

Ehrenreich’s defining emotion about her cancer was anger—anger at the impersonal
treatment by her doctors, anger at drug companies for offering harsh treatments with little
benefits, and anger at her fellow breast cancer sufferers for being unwaveringly cheerful in
their battle with cancer.


My point here is not to knock keeping a positive outlook when ill. As reported in The Cancer
Warrior, staying positive can have great benefits for people fighting cancer. My point is
that, like any other type of groupthink, illness cultures can be single-minded, and those
who don’t fit into the current line of thinking can find themselves excluded and alone—this
on top of the fact that they are already facing a serious illness.

In the end, sickness is incredibly personal, and all types of reactions to illness and ways of
dealing with it should be actively welcomed. It’s important that those facing illness, and
their loved ones, recognize this and internalize it. While some may deal with cancer by
distracting themselves, others may need time to grieve over their situation—even to feel
sorry for themselves.

In America, self-pity is often regarded as the worst type of emotion; we live by the “pull
yourself up by the bootstraps” line of thinking. This aversion to self-pity and the endless
positivism seen in many illness cultures is unrealistic and doesn’t reflect the range of
emotions people feel when confronted with cancer. While staying positive is helpful, it’s
also okay to express emotions besides optimism.

If you’re dealing with cancer or supporting a loved one, remember that it is okay for sick
people to deal with their illness in their own way. Discouraging this is counterproductive
and even harmful.



In her essay, Ehrenreich recounts posting on a breast cancer forum about how fed up she
felt with her doctors, treatments, and insurance company. The responses to her negative
attitude were quick and judgmental: “I really dislike you having a bad attitude towards
all of this, but you do, and it’s not going to help you in the least,” said one commenter.

Support groups are supposed to be just that—supportive of one another’s struggle with
cancer, not dismissive or judgmental. People experience a range of emotions as they come
to deal with facing cancer on a daily basis. Realizing your own approach to illness and
accepting others’ is essential to creating an illness culture that helps, and doesn’t hurt, its
members.


About the guest blogger:

Joy Paley is a blogger for An Apple A Day and a writer specializing in medical coding for Guide
to Healthcare Schools.

23 September 2015

Relationship with cancer






 There has been a lot of talk about how Catherine Zeta Jones has reacted to Michael Douglas' cancer and how she is not planning on going with him to his chemo and radiation treatments.  She has come under fire from all sides about how heartless she is, how can she not be with him during this difficult time.  She said that she didn't think she could see him like that, that maybe she should be stronger emotionally but she just isn't.

When I was diagnosed I had several friends disappear.  And I was pissed.  Pissed for a long time.  How could my friends just go away?  Don't they see that I need them?  Yeah I felt that way for a good 2 years.  But then I realized something.  I didn't know what their relationship with cancer is.  Maybe they had someone close to them die, maybe they watch tv and see the fictionalized version of what happens, maybe they are just scared and don't want to see their friend go through treatment.  It took me a long time to get over my anger at them.


So who are we to judge her and how she feels?  How she relates to cancer?  Because we know how we react? As survivors? As caregivers, friends, family, co-workers? 

Michael Douglas and Catherine Zeta Jones live in Hollywood.  Its a fishbowl.  They can't go anywhere without the paparazzi snapping photos and posting online and in the tabloids.  I know.  I lived and worked there for 10 years behind the scenes on television and award shows. Its a different world out there.  Imagine if every move you made was documented in print and on tv for everyone to talk about, to gossip about.  How would you feel?

Now add on a cancer diagnosis to that.  Paparazzi are probably swarming whatever hospital Michael Douglas is at hoping to snap a photo of him at his most vulnerable.  All for a quick buck.

Now imagine that was you.  During treatment.  At the time when you feel the lowest, the shittiest, the worst you will probably ever feel.  Walking to your car.  Someone takes a picture for all the world to see.

So yeah,  I am not upset with Catherine Zeta Jones.  As my friend Donald Wilhelm would say, hey  "it is what it is." 

It's their journey.  Not mine

I have my own journey.

Mel is the producer/co-host of The Vic McCarty Show.  Listen live Monday-Friday 10am-noon on wmktthetalkstation.com

Check out my podcast The Cancer Warrior on Empoweradio.com available on demand and on Itunes

20 September 2015

Enforcer





Hockey teams are like family.  We protect each other on and off the ice.   Many people think hockey is nothing but a boxing match on ice. To those people I say lace em up and see why you are wrong.

This has been a sad year for hockey.  Not only with the tragic loss of KHL Locomotiv team from a devastating plane crash, but two hockey players (Wade Belak and  Richard Rypien) took their own lives because of (assumingly) their battle with depression.

I subscribe to Sports Illustrated.  No surprise there to anyone I am sure.

Reading Brian Cazenueve's article about the deaths of 3 NHL players, in a few months, and the fact that they were all enforcers, it made me sad.  The fact that Mr. Cazenueve said that "A third untimely death may spur the NHL to take another look at 'place in the game"


Fighting.

Hmm.

Fighting has its place in hockey.  I am not one to disagree with that.  I do however disagree that the NHL should look at fighting as the root cause of these players tragic demise.

I battle depression.  I hate the word suffer, but yeah sometimes I do.  Mental illness still has a stigma attached to it.

Now imagine you are a tough guy in the NHL.  Would it be easy to tell someone that you are depressed?

I can tell you it wasn't for me, and I consider myself to be a strong person.

Not as physically strong as a professional hockey player, but strong nonetheless.

I kicked cancers ass, and continue to do so in this blog, and on my podcast.

But the hardest battles are the ones that others can't see.

My friend said to me recently:

Sometimes the scariest place is inside your own head


Maybe the NHL should focus on helping players from the inside out, not worry about players dropping the gloves.

Hockey teams are like a  family, and even though I am not in the NHL, or even close to being anywhere near a professional player, I am ok at best, I will drop the gloves for anyone battling depression or any other mental illness.

Even you.

Wanna go?




Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 9am-noon eastern time on wmktthetalkstation.com

Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.

22 Augustus 2015

Merrells



Its funny how certain things can remind you of events.  Smells, taste, clothing.  I remember when my fiance Doug was in the hospital and I was wearing this original 6 hockey shirt, it had the team logos on it.  He seemed ok then he started staring at it and then he had a seizure.  (That is what he was in the hospital for) 

It took me a year to wear that shirt again.  I almost tossed it out, but me being a hockey fan, well, of course it stayed in my wardrobe.

I have this pair of Merrell sandals.  They are my favorite shoes.  Not only because they signal the advent of spring/summer, they are just so damn comfortable.  I wear them whenever I can.  Biking, at work, everywhere.  I almost wore them to the Warrior dash, but I knew they would get ruined.

I bought them in the bargain basement of a local store.  I am not sure what year, but I know it was before I was diagnosed in Sept of 2007.

Now I don't remember what I was wearing when I heard my doc say "It's cancer"   but I do remember I had to get my physical the next day.  It was already scheduled for Sept 19th. I remember sitting on the exam table waiting for the doc to come in, staring down at my Merrells wondering what the hell was happening to me.

That was almost 4 years ago.  As you can see from the photo, they are well worn, and they are loved, and yeah they helped me get through treatment.

So you may look at them and wonder why don't I get a new pair?

Now you know why.

Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com

Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.

16 Augustus 2015

A review of Showtime's The Big c




Hollywood never ceases to amaze me.  I worked there for 10 years in the television industry, working on everything from award shows to movies of the week to sitcoms to drama.  So I know when hollywood creates something like the series The Big c I have to suspend my disbelief (and oh, if you are not a frequent reader of my blog then I will tell you I don't capitalize the word cancer, gives it too much power, so even just the letter c in a title, sorry not going to do it.)


Laura Linney's character Cathy Jameson is told she has stage IV melanoma and only has a year or so to live.  She is in obvious shock and decides to forgo chemo (she doesn't want to lose her hair) and doesn't get a second opinion.  Right, you only have a year to live.  Ok thanks for the news doc, I will take your word for it.  Bye now...

I know many stage IV survivors who were given their "expiration date" by doctors who are still here, past that date,  fighting, alive and kicking. 

In the pilot episode Cathy doesn't tell her husband or her son about her cancer diagnosis.  Some may think this is selfish, but I get this part.  Cancer is scary, and in the midst of a diagnosis it is hard to process anything.  So yeah I understand.  It took me a while to tell people about my diagnosis.  Some people knew right away, others knew later.  For me it was hard to keep telling the story over and over and over again.

Linney's character decides that she needs to start living, she has been an uptight housewife for too long.  She wants to let her freak flag fly (I didn't make that up it was on the showtime site for the show)  I understand she wants to let loose, who wouldn't want to tell people exactly what they think of them, or build a pool in the front yard, ( I live in an apartment complex, so I think the manager would be upset if I started digging up the place)  but it doesn't give you the right to treat people like crap, like telling one of her students she has to be fat and jolly or be the skinny bitch. Sure, like that student wouldn't go straight to the schools administration and tell them what she said.

I felt that her character was very unlikeable at the beginning of the show, and really had few redeeming qualities.  Perhaps the writers felt that this was important so we see her go through her transformation into someone living life to the fullest.

The jury is still out for me on this show.  I try not to make a judgement on a show based upon one episode.  Given the subject matter and the cast, I will continue to watch this hollywood version of cancer, and suspend my disbelief

Mel is the producer~co-host of The Vic McCarty Show.  Listen live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com

Check out my podcast The Cancer Warrior on Empoweradio.  Available  on demand and also available on Itunes

08 Augustus 2015

Warrior Dash


Before I got cancer I never understood why survivors did marathons, bike races and other endurance events taht they probably would have never done before.  I ran in high school.  Lettered in cross country.  Only ran one year.  I hated it.  Hated running.  I did better when I didn't run between meets.  Ironic I know.  We had 5 girls on the team.  I always came in last of our team.  I can't recall how I did overall.


Now I understand.

Cancer takes a lot of out of you.  It can make you feel weak in an instant when you were feeling so good.

Chemo fatigue.

Radiation fatigue

Fatigue from fucking who knows what.

As a cancer survivor I was sick and tired of feeling sick and tired.  When I was ready I got back to the gym.  Hopped back on the bike.  Jumped over the boards and back on the ice.

I participated in a 5k obstacle course called warrior dash.  I was going to train for it, but like I said, I hadn't ran since high school, and that was oh so many years ago, and my sad attempts at training reminded me why I hated to run.  No one ever looks happy when they are running.  At least not until they are finished running.

So we briskly walked the course.  Did all the obstacles. Got covered in mud. Jumped over flames.  Yes flames.  Crawled under barbed wire.  Finished the race.

Most people were surprised that I did I 5k.  I tell people I only run when chased.

Yeah I had fun at the race, with my friends.

But the Dash meant more than that...

So the next time you see a cancer survivor run a marathon, do a triathalon, or even climb a mountain, you don't need to wonder why.

Now you know.




Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com

Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.
 

06 Augustus 2015

Done




I wish that is what they would stamp on my cancer chart. DONE. As if you could just stamp something and have it be so like "top secret"  like on NCIS or "case closed," like the CIA does. Sadly that is not the case. I don't think you can ever be done with cancer. Even in remission or not having it for many years, there is always that scanxiety, with every blood test, or scan, or even phone call.

September 18th will be my 3 year cancerversary.  Still can't believe it has been 3 years.

Certain things I remember like they were yesterday.  Other stuff is just a giant chemoblur.  I remember when I was told, obviously, when the surgeon told me my options, when the oncologist said ok we can start chemo next week, I thought, what, already holy shit, give me more than 7 days after I get my port in to process this craziness.

My friends told me that it would be over before I knew it.  I didn't believe them at the time.

This is going to take forever I thought HOW MANY MONTHS WILL I HAVE THIS GODDAMN PORT IN?  How long will I be going through chemo and herceptin, and I have to reschedule my life around an afternoon radiation appointment?  Really?

My friend was right.  Although it didn't seem like it it did go by fast.  Now I watch other people go through similar situations that I did, chemo, surgery radiation, and I see the anger and frustrations in their posts.  I know how they feel, I felt that way too. 

Its hard to explain to my friends that soon this will be a distant memory, that this wont last forever, but when you are in the moment, surrounded by cancer, time stands still.

I will continue to advocate, continue to speak about patient empowerment, continue to share my story, continue to blog.

Until there is a cure.

Only then will I be Done.

Mel is the producer/co-host of The Vic McCarty Show.  Listen live Monday-Friday 10am-noon on wmktthetalkstation.com

Check out my podcast The Cancer Warrior on Empoweradio.com available on demand now and also available on Itunes

30 Julie 2015

Cruising for the Cure



I am on the board of directors for  Cruising for the Cure, a classic wooden boat show to benefit pancreatic cancer research.

I don't know much about boats.  I know I like to take photographs of them.  I am not a boat geek like the other board members of CFTC.  Truth be told I get nauseous if I sit in the back seat of a car.  That has gotten worse after cancer, and even though I grew up 10 minutes away from a lake I only learned how to swim about 5 or 6 years ago.

I don't think I told the other board members about that...

I have been involved with this organization for 3 years now.  I love to go out and advocate in public.  I love to see where, in even a small way, I have made a difference.

The boat show came at a perfect time for me.  I have written extensively about my battle with depression.  If my friends haven't read this blog they don't know how hard it has been in the last couple of weeks.  I am not sure why that is, stress of everyday life.  Maybe because I started a second job to help pay the bills.  Either way it has been a rough few weeks.

We had a silent auction on Friday, and the boat show/parade was on Saturday.  Both days were picture perfect.  The last 2 years I didn't ride in the parade, I didn't have any dramamine, and I would rather not get sick in a classic wooden boat. This year I bought some in the hopes I would be able to ride.

And I did.

I was introduced to Suzie and Bob Davies who own the boat Tango.  Suzie is on the board of directors for a local cancer charity.  It was a good fit.

We cruised around all of Torch Lake in the parade.  It felt great to be outside in the sun, with the wind in my hair and the occasionally splash of water from the lake.

I understood why Jane Thie loved boats, and why she loved that lake.

If every cancer survivor could experience that feeling, that would be awesome.


A lake carries you into recesses of feeling otherwise impenetrable.  ~William Wordsworth


Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com

Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.
 

16 Julie 2015

The Difference between Curing and Healing



Another guest blogger


The Origins of Pain
I saw a patient today who inspired me- let’s call her Sally. She suffers from a host of medical conditions that
threaten to rob you of your mojo- fibromyalgia, chronic fatigue syndrome, and chronic pelvic pain. When this young woman walked into my office, she looked like crap. Before looking at her chart, I thought she had cancer. Gaunt and pale, her skin hung on her skeleton like she was in the last grip of life. During the first half hour, she didn’t smile once. I felt the anxious tug we doctors feel when we see people like this, the one that says “I’m not going to be able to help this person,” which triggers insecurities and, often, judgments, in our own minds. It becomes about us, rather than being about them. We have a tendency to turn off because we don’t want to fail. But I vowed not to do this.Sitting in her presence, I was determined to be present for Sally and sit with whatever is true, rather than letting my own stuff get in the way.

What is true for Sally is that she has spent the last decade plagued by pain, fatigue, and a body that is betraying her.She has been to universities, fancy alternative medical clinics, and specialists. Someone told her that her condition is “incurable,” and somewhere, a while back, she decided to believe them. But she never gave up trying to be well. When she came to see me for a gynecologic complaint, I heard her words, but what I saw in front of me told me that her condition was deeper than what her words betrayed. This was not about
a pain in her pelvis, this was about a core wound. I listened while she talked about her pelvis, but I focused more energy on watching her, feeling her, being with her in the moment. What rang out loud and clear was this message: “I am not well.” And yet, I could see this glowing, radiant energy beneath the surface, a vision of a vibrant, vital being, leaping in the air and spinning with glee.

Unbidden, she began to tell me about her favorite place, a remote town near Santa Fe, where she owns a vacation house. She fantasizes about quitting her job, living there full time, and spending time with animals in some way.  Currently, she owns her own business, selling software to help people maintain their gardens. She works until 2am many nights, finishing projects and meeting deadlines. A team of people bow to her leadership. Years ago, she gave birth to her company from a place of passion, but lately, she dreads everything about it. It has become her ball and chain, and she suspects it is related to her illness.

The Power to Heal
Last year, fed up with being sick, she considered quitting her job. She went as far as selling her primary residence, with the intention that she would live full time near Santa Fe. With money in the bank to help support her, she settled into a new life. And miraculously, her symptoms disappeared. For two whole months, she felt like a vibrant twenty year old, brimming with energy and vitality. She hiked every day, ate wholesome food, wrote in her journal, and meditated. “I did everything right,” she said. And her body rewarded her with new life.

Then her mother had a heart attack, and she left Santa Fe to return to California, where she is now caretaking her family. Because she is back in the area, she has resurrected her business. Within days of returning to her old life, her symptoms reappeared. She has been coming to our integrative medicine center almost weekly ever since. Her thick chart belies a series of supplements, laboratory tests, and referral letters that conclude, “There is nothing we can do.”

Yet, to me, seeing Sally for the first time, the answer is obvious. Her body has already told her what it needs to be healed. She needs to release the expectation she has placed on herself to care for her family. She needs to let go of her business. And she needs to move back to that small village near Santa Fe, where her body knows how to heal itself. Only I can’t say this to her. It is not my place to give advice. Advice implies that someone is broken- and nobody is broken.

Instead, I ask her, “What does your body need in order to get better?”

She says, “I need to find care for my mother, let go of my business, and move back to Santa Fe.”

Bingo.

When she says this, I see, for the first time of our visit, a faint smile. I ask her what she will do when she is there. She says, “Hike, ski, paint, play with my dog. Maybe start a new business, something related to animals.” Her smile widens. She begins to talk about the steps she would need to take in order to put this plan in place. Some steps she has already begun, as she has known intuitively what she needs to do. Within moments, she is grinning. I ask her how her pain feels in this present moment- right here, right now, and she says, “It’s gone.”

Then something shifts. A dark cloud wafts across her. She curls her shoulders inward. Her smile disappears. Her brow furrows. Sally says, “I can’t do this. And what’s the point? My doctor said there was no cure for my condition.”

Healed Versus Cured

I can’t help telling her the story of my father. Dad was diagnosed with a gigantic goomba of a brain tumor when I was 7 months pregnant. A body scan revealed that there was cancer everywhere. A biopsy confirmed metastatic melanoma, which comes with a near certain death sentence. My father, a physician who did his senior thesis on melanoma, knew the facts about his prognosis. So when he called me one morning at 4am to say that he had a vision and that God had come to him to tell him he had been healed, I groaned. “Oh no,” I thought. “The brain tumor is growing. He’s delusional. And he’s in denial.” I nodded and told Dad I was thrilled that he was healed, but I dreaded the repeat body scan that would tell him the truth. When the body scan showed that the tumors were growing, Dad got quiet. He didn’t speak of his vision again. My heart ached.

A month later, Dad failed to experience any of the expected symptoms of a gigantic brain tumor. He had no
headaches, no seizures, no vomiting, no dementia. He was plain old Dad, only with a bald head from the whole brain radiation they gave him. So when Siena was born and Dad said, “Can I go now?” I wasn’t prepared. What did he mean, “go?” What exactly did he plan to do? Dad said he was going to quit eating and die a peaceful death. Hewanted our permission. Reluctantly, we gave it.

Dad kissed us goodbye, and when I asked whether he was scared, Dad said, “I’m not scared. I’m joyful.” He kissed way our tears, closed his eyes, and died peacefully 48 hours later.

Only in retrospect did I learn a very important lesson- one that has fundamentally changed the way I practice
medicine. I realized that, in spite of my skepticism, Dad had been healed- that there is difference between
healing and curing. I always thought they were the same. Now, I realize that you can healed without being cured, and you can be cured without being healed. I spent 12 years of medical education learning how to cure people, but no one once spoke to me about healing. In fact, we don’t even use the term “Healing” in reference to patients. We might talk about a healing wound, but a healing patient? Nah. Too woo-woo.

The Whole Picture

So when that doctor told Sally that she would never be cured, he failed to look at the whole picture. Yes, there may not be a drug she can take to rid herself of symptoms permanently. But I absolutely believe that she can be healed. Her body has already proven it to her. The power to heal lies within us all, if only we tap into it.
What about you Pinkies? What needs to be healed in your body, your soul, your heart, your life? What would it take to feel better? What steps might you take to put a healing plan into place? How can we support you?

Committed to helping you (and me) heal,
Lissa

  About the guest blogger: 


Lissa Rankin is an OB/GYN physician, founder of Owning Pink,  http://www.owningpink.com   and author of the forthcoming What's Up Down There: Questions You'd Only Ask Your Gynecologist If She Was Your Best Friend (St. Martin's Press, September 2010).

19 Junie 2015

My Love/Hate Relationship With The Net


 Another guest blogger. Enjoy

There are a lot of things I don't like about Facebook, Twitter and the Internet.


I don't like how the Internet splits up our information source--so instead of everyone reading a headline and then forming opinions on it, we get news from so many separate and sometimes unequal places of knowledge (Huffington Post, the Drudge Report, CNN) that the credibility of the facts we get are oftentimes up for grabs.

I don't like that search engines--like Google for example--apparently track the kind of links we click on, keep score, and then "feed" us what they think we want to read when we next search a topic. The engines filter our information based on our past choices, which is okay if there's a disclaimer on top of the screen that says "Hey, I'm giving you this because you last clicked "Paris Hilton" when you were eating that gallon of ice cream and having a down day about your break up when you last searched Paris. Do you really want me to send you to a similar kind of meaningless, airy website about an heiress who does mindless things with her millions with today's new search for "Paris" or do you want to learn about the real city, its history and culture?"

All of this means you and I may not get the same knowledge about politics or food or what's going on in Afghanistan--and that leads to a much grander worry that the world will become more separate than equal. And now that I've scared you, let me tell you what I love about Facebook, Twitter and the Internet. I love--and I mean LOVE--that I can reach out to people all over the world in a moment of fear and doubt and get help when I need it. Like this week for example--

when I got an email about a doctor in Texas who allegedly has the "cure" for cancer, but--and this is where it gets scary for me--has been allegedly "suppressed" by the FDA and the government. Talk about hitting me in my sweet spot--I got so worried and upset I spent three hours googling, searching and otherwise trying to find out who this doctor is and what his treatments are--and worse, if I've been sold a bill of goods by the entire medical establishment over these last 7 years as I try to (now) beat back metastatic breast cancer at age 45.

I'm still working on that last part--I have no idea what to say about Dr. Burzynski and his antineoplastons. I'll keep googling--and asking questions, and using the Internet to help me separate fact from fiction. And for that I am FOREVER grateful for cyberspace and all of our choices out there--whether I've been handed them on a silver search platter or not.

But I absolutely LOVE Facebook, Twitter and the Internet for this one reason--my friends out there who are helping me weigh in on this huge, important, life-in-the-balance matter by reading what I post, doing their own research and then commenting and helping me figure this mess out. I know our IT World is a crazy one--full of potential misrepresentations, mistakes and misnomers--

but knowing I have people from San Francisco to an island 20 miles off the coast of Maine helping me figure out my scared-out-of-my-wits fears-for-my-life makes me feel like I am not alone--that I can do this, I will figure it out.

And if that's the price I pay for spliced up news and misdirected cyber information, I'll pay that bill-- all day long.

About the Guest blogger: Ann Murray Paige is the author of 'pink tips. breast cancer advice from someone who's been there,' available at www.annmurraypaige.com.  She is an award-winning writer, co-founder of the breast cancer non-profit Project Pink, mother, wife, blogger and breast cancer fighter now battling metastatic breast cancer.  Read her blog, "Ann's Diary" at www.projectpinkdiary.com

13 Junie 2015

Out of your comfort zone


Everything about cancer takes you out of your comfort zone.

When I heard those words "It's cancer"  my life changed forever, for good and for bad.

Bad, well, because cancer sucks, and the treatment and side effects are worse than the disease.

Good because of the friends I have made, the better person I have become, the voice it has given me.

Work recently did a team building day retreat at a local camp.  It had a rock climbing wall and other things that you could climb.  Not something that I would normally do.

I tried the rock wall.  Didn't get very high.  Disappointed in myself that I couldn't climb to the top.  Rock climbing really isn't my thing.

Then I tried climbing up a rope ladder to a beam 30 feet in the air.  Looked easy from the ground.  Halfway up I thought "What the hell was I thinking??"

I made it up to the top, and actually walked across the beam to the other side.  Then yeah you just jump off.  You are well harnessed in.  Bad pr if you get injured on a team building retreat and work at the local radio station.

As I watched my co workers climb, cheer each other on I was reminded of my battle with cancer.  How it takes you completely out of your comfort zone. Into a whole new world that you are not prepared for mentally or physically.  That most of us face challenges we would otherwise would never be subjected to, and how afterwards we do whatever we can to stay strong, whether it be run in marathons, do triathalons, bike races etc.

I walked in a Making Strides walk 11 days after my lumpectomy surgery.


We strive to stay strong, because we know what it is like to feel so weak.

Some of my friends have called me a machine, because I barely stop to take a break.  I do my radio job, then I usually exercise, I do grab a nap when I can, then I am on the computer working on pr/marketing for The Cancer Warrior or my other facebook clients, or surfing the net, talking to other survivors, reading blogs and posting.  Fighting the fight.

They say there is no rest for the weary, I don't completely agree with that. I am determined to stay strong, so that those who are weary, those survivors who I advocate for, can rest.

Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com

Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.

23 April 2015

A Hero Named Holden


Another guest blogger, Enjoy

The word “cancer” sends chills of fear down the spines of just about anyone – but it might be most terrifying for a parent who hears the diagnosis for his or her child.

That was the case for the Harless family. An MRI at the Riley Hospital for Children at IU Health revealed their worst fears: the source of the back pain that their two-year-old son, Holden, had been complaining of was a spine tumor, not constipation as one doctor wrongfully diagnosed it.

But today, Holden runs around the family farm with the energetic abandon of a healthy eight-year-old.  He’s a heroic survivor and an example of the many triumphs being celebrated at the Riley Hospital for Children Cancer Center, the only such facility in Indiana and a recognized national leader in clinical care and research in cancers that affect children.

According to the National Cancer Institute (NCI), fewer than two American children out of every 10,000 under age 15 develop cancer. While relatively rare for children, cancer is still the second leading cause of death for Americans 1 to 14 years of age, after accidents. The American Cancer Society reports that in 2007, about 10,400 American children under age 15 were diagnosed with cancer and that about 1,545 children die from the disease each year.

Cancers of the central nervous system (CNS)—the brain, brain stem and spinal cord—are the second most frequent malignancy affecting children, and are more common in those under 7, like Holden. And the prognosis for children diagnosed with CNS cancer is less favorable than for other forms of childhood cancer, such as acute lymphoblastic leukemia.

Understandably, “terrifying” is the word Holden’s mother uses to describe the moment she heard his diagnosis. Even more frightening was the choice she faced: allow Holden to undergo surgery, or expect that in six months, without surgery, her son could be paralyzed and never walk again.

That the Harless family encountered such a grim prospect is unbelievable. That is, it’s unbelievable when you see Holden today, brimming with energy and the picture of health. That’s because the Harless family chose surgery, after discussing the options at Riley with pediatric neurosurgeon Jodi Smith, M.D.


Survival rates of children with cancer are on the upswing, according to a study by the Centers for Disease Control and Prevention. Childhood leukemia death rates fell by 3% a year, from 1990 to 2004, the study found, compared to 1% a year for childhood brain and other nervous system cancers. The CDC says improved treatment of childhood cancers is the likely reason for this.

All Mrs. Harless knows, and is thankful for, is that after Holden's surgery, “Dr. Jodi said Holden had done great and that it went better than she could have hoped for. All the doctors were great there. The physical therapists, the neurosurgeons, everyone was phenomenal. I can't thank Riley enough for what they did for Holden. They gave us our family and basically his life."


About the Author:  Jon Dawson is an attorney and professional writer in Indianapolis. He has first-hand experience with pediatric cancer as he lost his sister to the disease. Jon writes on behalf of IUHealth and also contributes to several blogs including www.DoseOfMyOwn.com.





28 Februarie 2015

The Long and Winding Road


Those of you who are frequent readers of this post know I like to exercise.  Makes me feel good, it slowly gets me back to where I was before all of this. Before cancer, before side effects, before I knew so many medical terms one of my doctors asked me if I was in the medical industry, unfortunately, no I am just a student of my disease.
So I have decided to try to take up running again.  I haven't run since high school when I ran cross country. I lettered in that. Still have the varsity jacket, and it still fits.

Running will definitely take me out of my comfort zone. I haven't run since high school because of my knees, and well, quite honestly running never really appealled to me, probably because of the growing pains I had with my knees.  I only ran the one year for cross country, and after I lettered I guess I wasn't that interested in it. 

In high school I wasn't much of an athlete.  Didn't participate in team sports after  cross country in 9th grade I believe.  I even recall that many of my classmates were on diets, drinking diet coke and worrying about their weight.  I never did that.   Wasn't my thing.

Back to me deciding to run.  I have my reservations wondering if I will enjoy it.  I know it will be hard at first.  Different than what I am used to doing.  In the summer I love to ride my bike on the local bike path.  Nothing like you and your bike and you and the serenity of nature.
 
I have a friend who is going to go running with me.  Train me I guess. She is one of the pilates instructors from pilates midwest, the pilates studio where I did the pink ribbon program and where I currently take pilates classes.  I don't even know if that is the right terminology.  All I know is I enjoy going there and she enjoys kicking my butt.
 
So we did a 5k walk this past Saturday, my friend the pilates instructor, Jan and I walked,while the other pilates instructor ran. It was cold, about 20 degrees outside.  It was good to get outside in the fresh air. 
 
But of course we know, as cancer survivors, nothing is ever easy.
 
I have osteopenia.  I need to do weight bearing exercises to keep the osteoporosis away.  So I thought the walk would be a good addition to the pilates and hockey that I do currently.
 
The next day I noticed my neuropathy flaring up. 
 
So let me get this straight.
 
I am trying to get back into shape with the help of one of my friends, and the walk causes a side effect?
 
The neuropathy doesn't really hurt.  My foot is numb.  Its more of an annoyance, but I would rather it not get back to the point of shooting pain going all the way up my leg to my knee.
 
I am hoping that running will cause a break through and it will go away permanently, and not have it return doing something that I want to do.
 
 
Mel is the producer/co~host of The Vic McCarty Show. Listen Live Monday~Friday 10am-noon eastern time on wmktthetalkstation.com
Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes.

06 Februarie 2015

My dinner with Susan



Remember when you were in school and the teacher asked you to pick one person dead or alive from any time in history to have dinner with, to talk to, to gain words of wisdom from?  I do.  I can't recall who I picked, but family members aside (yes Dad, you would be first, as long as dinner would include your delicious goulash)  I would pick Susan Komen to sit down and have dinner with.

"What???"  You are thinking...

"All the amazing people throughout history and you pick her?"

I am a bit of a history buff, I love the stories of how our country was founded, hey I grew up in one of the 13 original colonies, can't help that, and the whole story of Pearl Harbor intrigues me, but yes even with the chance of having dinner with John Adams or George Washington, I pick Susan G. Komen.

As any cancer survivor knows her battle and unfortunate death because of cancer started the Susan G. Komen foundation.

Nancy Brinker.

Susan Komen's sister.

Her name instills anger in many cancer survivors, because of the recent uproar over "pinkwashing", something I had written about in 2008 on the stupid cancer blog.

and then again dear dear Nancy and her Komen foundation created Promise Me perfume, ironically which could cause cancer, and most of us have issues with strong fragrances while going through chemo and well beyond that.

And now pulling funding from planned parenthood, which it seems to be a political move, and many assume that the poor and un and underinsured will not be able to get mammograms.

Then panic sets in.

Now lets be honest, Planned Parenthood isn't the only place women can get mammograms or cancer information. There is no need to press the panic button.

Komen however did press that panic button and decided to rescind their decision on  funding planned parenthood

Dinner time.

I can imagine Susan and I sitting down to dinner.

I think the first thing I would show her is the Komen website, show her where it says about Susan, which is little more than a glossed over story about Nancy.

Tell her that even though her sister has taken the pink ribbon and tried to sue other organizations for using it, as well as suing other organizations who use for the cure as if breast cancer is the only cancer we want cured.

Let her know that it was in fact Evelyn Lauder who created the pink ribbon campaign, and the Estee Lauder foundation has not tried to sue other organizations for use of the pink ribbon.

By this time I can imagine Susan is silent.  Wondering how this all has happened.  How an organization that was founded through, what I am sure was love, has become so large, so hated by many, including the very cancer survivors the organization was founded for.

I wish I could actually have this dinner, have this conversation. 

Wonder what she would say that her sister can't see the cancer awareness forest for the pink trees? 

Ask her how putting a pink ribbon on friskies or alcohol furthers research and awareness.

But I can't

I can only wonder how her sister Nancy became so far removed from what she started

for Susan.



Check out my podcast The Cancer Warrior on Empoweradio.com Available on demand and also available on Itunes. 

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